My mom, my sister, and baby Shoshi |
Despite not drinking, smoking or taking anti-depressants (unfortunately
for everyone), the second opinion doctor or, as my mother refers to him, That
Fucking Asswipe, insisted she was somehow at fault for the genetic fluke. She
ignored him. At sixteen months, after the first surgery that connected the
artery from my right arm to my heart, left a machete-like scar, she insisted I
wear it like a badge of honor. After the surgery, when
I scooted across the floor, my ability to breath made it harder to find me. Then, to my mother’s delight, out of my blue lips came, not just a first word, but a
sentence: “I want that red balloon.” Slow walking followed suit, with the
occasional, “Wait, mommy, I gotta sit down.”
Three years passed between surgeries. For the second, my parents flew our family across the country, dropping my older sister at summer camp, while we spent June at Columbia Presbyterian Hospital in New York City.
Baby Shoshi not looking Blue |
Three years passed between surgeries. For the second, my parents flew our family across the country, dropping my older sister at summer camp, while we spent June at Columbia Presbyterian Hospital in New York City.
“It was like a roach motel,” My mother laughs at the memory. “We
had three choices: sit in the room, walk around the sketchy neighborhood, or
sleep at your grandparents in the Bronx. Clearly, I slept with you in your room.”
When baseball great, Dave Winfield visited my room, I traded my new Dave
Winfield baseball card for my roommate Junior’s sparkly Michael Jackson card. When it came time for surgery, the nurses put
an oxygen mask over my teddy bear’s mouth. A week after surgery, I ran down the
hall to my heart surgeon. (My mother notes, “I haven’t seen you run since."). My
only real complaint was the terrible taste of pure potassium they forced me to
drink for weeks after.
As I grew, the cardiology visits were a yearly ritual; my
parents and I sat in a dark room listening to the unsteady beating of my
heart. The shwoosh, shwoosh,
shwoosh, long pause, shwoosh, shwoosh was magic to my mother’s ears. And now, despite the blue, despite the labored
breathing, the surgeries and the scars, I have babies of my own. And my babies...are pink.
The Great Rabbi, The Queen Mum...my pink babies |
I love the strength, bravery, and self-respect your mother modeled for you. Love the contrast of your blue self and your pink babies. Love, love, love.
ReplyDeleteThanks! It didn't start out with it being about my mother, but I realized that it was...
DeleteI am balling. Seriously. Thank you for writing this. Its hard for me to get out of my own head sometimes - hard to see the forest through the trees as they say.
ReplyDeleteThanks hun. Thanks so much.
I wrote it for you! and my mother...
DeleteI know :) Thank you so much! I'm sure your mother will love it!
DeleteI love the strength and tenacity of your mom! And I also love that when we stop a take a moment to listen, every single soul we encounter has an amazing story to tell. Thank you for sharing yours.
ReplyDeleteYay for pink babies! Your mom sounds like a heck of a woman!
ReplyDeleteThis is fantastic. I love the photos of baby you. Your mom sounds like a tough lady.
ReplyDeleteFrom Jewish Mom to Jewish Mom to Jewish Mom...you have to love the barbs thrown in with the love...It made me smile and laugh with the tears.
ReplyDeleteI love this story of triumph and health and love! Ellen
ReplyDeleteGreat story. I especially like the pink babies. Nicely done.
ReplyDeleteLove what a strong character you painted here in your no-nonsense mama. And so glad your little ones are healthy (they're beautiful, too).
ReplyDeleteYeah! It's funny. You're writing it - so I KNOW you lived. And yet I spent the whole thing worried that maybe you somehow didn't!!
ReplyDeleteAwesome. That is the best compliment EVER.
DeleteHeld my breath throughout your story. I can't imagine what you or your mom went through during your health crises. What a triumph to walk through these challenges and to have healthy pink babies! Well done (you, your mom, and this post)!
ReplyDeleteWonderful. It sounds like your mother handled what must have been so frightening with such strength.
ReplyDeleteWow -- furious with the doc that tried to convince your mom that she was to blame, seriously NOT COOL. And your mom sounds like a wonderful, strong person who clearly adores you. Congratulations on your gorgeous pink babies!
ReplyDeleteLOVE this story. thank you for sharing.
ReplyDeleteYour Mom sounds incredible, as do YOU!! What a strong family!
ReplyDeleteI also loved the last line, it really made me realize how much I took for granted with my children. They do face life threatening allergies, but they were born pink. They have a better start than some.
Thank you so much for sharing this story. It was great!